By the time you are required to see a specialist, you likely have a lot of questions, very few answers and plenty of frustration. That’s completely common and, unfortunately, part of the medical diagnosis process. While you might feel like you’ve “used up” all your questions or couldn’t have any more, it’s imperative to exhaust all the possible questions at these specialist appointments. That is because this is usually where and when you get to a diagnosis and, ultimately, treatment. Therefore, in part 4 of this series, I’m discussing questions to ask the specialists.  

What to Ask in Your First Visit

Like almost everything in the medical field, questions tend to be specific to the issues, potential diagnosis, etc. However, there are some general questions you’ll want to consider asking in your first appointment. 

• What is the next step to get my child feeling better?
• What tests and labs will my child need? (Be on the lookout for part 6 with “Questions to Ask About Labs.”)
• How long does it take to get the test or lab results? 
• Should I be tracking anything to help with a diagnosis? If yes, what?
• What is your best guess for how long it will take to get a diagnosis? 
• Do you have an online portal or MyChart that shows labs and allows me to send messages?

These are just a few of the overall questions you will want to think about asking your specialists. Before the appointment, think hard about the symptoms and issues your child is having and if you have additional questions specific to those. 

What to Ask When You Receive a Diagnosis

Receiving a diagnosis comes with a mix of emotions. You’ll likely feel relieved to finally know the issue. If it’s a lifechanging, unexpected or unfortunate diagnosis, then you’ll likely feel fear of the unknown. These emotions are all perfectly normal. A good way to manage it is to take it all one step at a time.

Now that you finally have some answers, it likely will lead to more questions. Here are a few general questions to consider asking your specialist. 

• What does this diagnosis mean? I know that seems obvious, but you’d be surprised how that transparent question helps to lay out things initially. 
• Is this a lifelong diagnosis or something they could grow out of at some point? 
• What are the treatment options? 
• If medicine is required, how long will my child need to be on these medications? 
• Is surgery going to be a potential treatment option? (Be on the lookout for part 5 with “Questions to Ask for Surgeries and Procedures.”)

Before the specialist leaves the room, be sure to feel confident about an understanding of the diagnosis, treatment options and next steps. 

What to Ask When You’ve Yet to Get a Diagnosis

There is truly nothing more frustrating in the medical field than having a sick or unhealthy child and not knowing what is wrong. Just remember to keep a clear mind and not let frustration cloud your mind. This will allow you to think clearly and ask what you need to ask on your child’s behalf. 

• Do we need to transfer to a different specialty practice? 
• Does my child need additional testing? If so, what tests? 
• What are the next steps to get answers? 
• Are there symptoms you know of that I could be missing or forgetting to mention? Remember they are the experts in their field.

I know I’ve mentioned this in the series before, but always trust your instincts. You might not be a medical expert, but you are an expert in your child. If the specialist isn’t helping, get a second opinion or go back to the pediatrician for help. At the end of the day, you are your child’s advocate for getting answers. Don’t give up!

Unfortunately, illnesses, accidents or other medical issues may end up needing surgery or a procedure. The best way to combat fear for either is to be knowledgeable about it, and that is accomplished by asking questions. That’s why part 5 of the series coming out in December is, “Questions to Ask for Surgeries and Procedures.”